012 664 8871 dsat@downs.org.za

Down Syndrome Association of Tshwane 1st Newsletter 

We would like to Welcome all to our first monthly Newsletter. This will keep you informed of all the happenings of the Association, let you keep us posted of all your happenings and bring us as a community closer together.

 

WOW, what a year, we had the upgrade of the offices and the new therapy centre. We have had fundraising events that actually made money. We have developed the Self Advocacy group, had new parents join and have just recently had our International Down Syndrome awareness day 21 March recognised by the UN. So, our magazine will fill you in on all the years events, we want to keep you updated on the here and now!

Last week was full and fun, we had the young adults year end on Friday evening, they all dressed up and looked gorgeous, ate a hearty 3 course meal and danced the evening away. On Saturday the self advocates went gallivanting on the Gautrain and they had a blast! A special thank you to Petra who is working with the self Advocates and who arranged a weekend filled with fun for our young adults.

Sunday saw us having a fantastic Christmas party, although Santa could not stay for his milk and cookies he  left a variety of pressies for our little ones who just had a blast. Thank you to Thys and his sidekicks for their fabulous braaing and to Weber for the fantastic pizzas our kids enjoyed so much.

So, we have just appointed a new board who will be introducing themselves in the next newsletter. If you have any questions, please feel free to send them along and we’ll get the board to answer just for you!!

A special thank you to last years board who took on their positions with vigorous enthusiasm and dedication; they were: Chair: Rinske Pouwels, Vice Chair: Debbie Bester, Treasurer: Corné de Klerk, Petra Le Roux, Ancella Ramjas, Santhini Naidoo, Tania Collins, Zelna Barends, Hans Pouwels, Thabang Chiloane, Cathy Makobe, Mario Visagie, Mphephethi Mokgoko, Rebekka Mokgoko, Maria Mayime, Marcel Nieuwenhuizen A special thank you to our Chair Rinske Pouwels, Vice Chair Debbie Bester, Treasurer Corné de Klerk and Financial advisor Hans Pouwels who stepped down for the new term, thank you for your hard work and dedication over the last couple of years you have all left large shoes to fill .

  

 I found this poem one day doing a surf on the net, it touched me and I hope you will all be just as touched:

The Creed of babies with Down Syndrome

My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I’m no different
His love knows no bounds
It’s those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I’ve chosen
Will help me get started
For I’m one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I’ll do it as you do
But at my own pace

Author Unknown 

December AKA Silly Season is approaching fast and with it the sound of Christmas Carols, sleighbells and many Ho HO Ho’s to follow.  Tis the season to be Jolly – well I don’t always feel Jolly, I love Christmas and any celebrations to be honest, but I dread Christmas shopping, the crowds, the running after Joshua and stopping him from pulling everything in sight off of the shelves, yes lovely people, this is a reality. We put him in the seat of the trolley, he bungee jumps out, we put him in the back of the trolley, he throws our groceries out the trolley – humph, but he looks at us and smiles and my world melts and I love him again. No the Christmas shopping is not a jolly time, the celebrations, however, are and with the celebrations come the sharing of gifts and the reminder of what Christmas is all about, family, sharing, giving and most of all unconditional love. So remember this Christmas, to give everyone who is special to you an extra big hug and let them know how you feel.

 

The Next issue will be filled with fun facts, information, more information and then…some information, and along with all that information we would like you to contribute any stories about your little ones or big ones, to share your fears and joys, we will also be including all the pics taken at the year end function and Christmas party so if anyone has any objection what so ever about their childs pic appearing in the Newsletter – speak now or Forever hold your peace.

A Huge thank you to the Staff at DSAT, Petra, Rinske and Ancella. Your work does not go unnoticed, you all do a fantastic job and we thank you for your support and all your hard work and look forward to a New Year working together to bring awareness to the world about how awesome our kids are!!

Also, thank you to the Therapists Lenieze and Tinette in OT and Emma in speech, your patience, love and dedication to our children is beyond expectation and we thank you for all your hard work.

So here’s wishing you all a Merry Christmas and a prosperous New Year!!

 

Tel: 012-664 8871

Fax: 012-664 8349

Website: www.downsyndromepretoria.co.za